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Nephrology datasets
Chronic kidney disease and nephrology datasets
Chronic kidney disease research is built on repeated laboratory measures over time — eGFR, albuminuria and the treatments that change their course. BCONZ provides governed, de-identified US nephrology datasets for CKD progression, outcomes and treatment research.
Not a free download. These are governed, research-grade datasets licensed for a defined purpose after a feasibility review — built for studies and products that public datasets cannot support.
Research uses
What nephrology datasets are used for
CKD progression
eGFR trajectories and time to kidney replacement therapy in real-world populations.
Cardio-renal-metabolic outcomes
Real-world evidence for SGLT2 inhibitors, GLP-1 receptor agonists and other therapies across kidney, heart and metabolic endpoints.
Risk prediction
Development and validation of CKD risk models on longitudinal laboratory data.
Comorbidity and care pathways
Diabetes, hypertension and heart failure alongside CKD.
How access works
- Tell us your research question through the research data request form.
- We confirm feasibility: whether a suitable cohort exists, its size, follow-up and available data types.
- Governance review and a data use agreement define the permitted purpose.
- The de-identified dataset is prepared, quality-reviewed and delivered securely.
Hold nephrology data yourself? A healthcare data readiness assessment shows what it can support, and DIA shows who has published a need for it.
Frequently asked questions
Nephrology datasets: common questions
What are the chronic kidney disease patient numbers based on?
Figures are approximate and rounded down. They count patients in de-identified US EMR/EHR data with a recorded diagnosis in the area; a patient can appear in more than one indication. The cohort for a specific study is confirmed during feasibility.
How are these chronic kidney disease datasets different from public datasets on Kaggle or GitHub?
Public datasets are valuable for learning and benchmarking, but they are usually small, single-source, fixed snapshots with limited clinical context and no route to more data. BCONZ datasets are research-grade, de-identified and licensed through governed partnerships, with longitudinal records and a feasibility step to confirm the cohort fits your study before any agreement.
Is this a free dataset download?
No. Access is licensed for a defined research or development purpose under a data use agreement, after a feasibility review. Tell us what you need through the research data request form.
Where does the data come from?
From US healthcare data partners, and from partner networks in other regions where a study needs them. Data is de-identified before research use and stays governed by the partner's agreement.
