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Metabolic datasets
MASH (NASH) and metabolic liver disease datasets
MASH — metabolic dysfunction-associated steatohepatitis, formerly NASH — is a fast-moving development area, and real-world evidence on how patients progress and are treated is still thin. BCONZ provides governed, de-identified US EHR datasets for MASH research, drug development and model building.
Not a free download. These are governed, research-grade datasets licensed for a defined purpose after a feasibility review — built for studies and products that public datasets cannot support.
Research uses
What metabolic datasets are used for
Natural history and progression
Liver enzyme and fibrosis-marker trajectories, and progression towards cirrhosis, over longitudinal follow-up.
Real-world treatment evidence
Use and outcomes of newly approved MASH therapies and metabolic treatments such as GLP-1 receptor agonists.
Cardio-metabolic comorbidity
Type 2 diabetes, obesity, dyslipidaemia and cardiovascular disease alongside MASH.
Patient identification
Non-invasive markers and risk scores to find under-diagnosed patients for studies and trials.
How access works
- Tell us your research question through the research data request form.
- We confirm feasibility: whether a suitable cohort exists, its size, follow-up and available data types.
- Governance review and a data use agreement define the permitted purpose.
- The de-identified dataset is prepared, quality-reviewed and delivered securely.
Hold metabolic data yourself? A healthcare data readiness assessment shows what it can support, and DIA shows who has published a need for it.
Frequently asked questions
Metabolic datasets: common questions
Do the datasets use the new MASH / MASLD terminology?
Records use the diagnosis codes in place at the time of care, so older records typically refer to NASH or NAFLD. Cohorts are defined across both the older and newer terminology.
What are the MASH patient numbers based on?
Figures are approximate and rounded down. They count patients in de-identified US EMR/EHR data with a recorded diagnosis in the area; a patient can appear in more than one indication. The cohort for a specific study is confirmed during feasibility.
How are these MASH datasets different from public datasets on Kaggle or GitHub?
Public datasets are valuable for learning and benchmarking, but they are usually small, single-source, fixed snapshots with limited clinical context and no route to more data. BCONZ datasets are research-grade, de-identified and licensed through governed partnerships, with longitudinal records and a feasibility step to confirm the cohort fits your study before any agreement.
Is this a free dataset download?
No. Access is licensed for a defined research or development purpose under a data use agreement, after a feasibility review. Tell us what you need through the research data request form.
Where does the data come from?
From US healthcare data partners, and from partner networks in other regions where a study needs them. Data is de-identified before research use and stays governed by the partner's agreement.